Rare Diseases & Syndromes
Connecticut
- Ann's Place Inc
- Childhood Cancer Kids
- Children's Fund for Glycogen Storage Disease Research
- Circle of Care for Families with Cancer
- Connecticut Children's Foundation, Inc
- Cornelia de Lange Syndrome Foundation Inc
- CT Challenge
- First Candle Inc
- Hist1H1E Genetic Syndrome Research Foundation
- Hope In Focus Inc
- Jack's Corner Foundation Inc
- Julia's Wings Foundation
- Mast Cell Hope Inc
- National Organization for Rare Diseases (NORD)
- PINK Concussions
- Prader Willi Syndrome Families United Inc
- Project Purple Inc
- Sickle Cell Disease Association of America of Southern CT
- Tango2 Research Foundation Inc
- The ALS Association Connecticut Chapter
- The ELM Project
- The Joshua Foundation
- This is Me Foundation Inc
- UCP of Eastern CT
- VWM Families Foundation Inc
- Warrior Collective Inc
Massachusetts
- ALD Connect Inc
- Amyloidosis Research Consortium Inc
- Choroideremia Research Foundation Inc
- Cure Rare Disease
- Cushings Support and Research Foundation Inc
- Hospitality Homes Inc
- Jansen De Vries Syndrome Foundation
- Li Fraumeni Syndrome Association
- Myasthenia Gravis Foundation of America
- Neurofibromatosis Inc Northeast
- Our Odyssey Inc
- Rare New England
- Rett Syndrome Association of Massachusetts Inc
- Talia Duff Foundation
- The Progeria Research Foundation, Inc
- Usher Syndrome Society
- VHL Alliance Inc
Rhode Island
New Hampshire
Maine
- Alstrom Syndrome International
- ASXL Rare Research Endowment Foundation
- Cloves Syndrome Community
- Foundation For USP7 Related Diseases
Vermont
Other